Clearer diagnosis.
Better care.
We are dedicated to supporting our community through advocacy, resources and accessible genetic testing.
TESTIMONIALS
"I feel I have a support system of people who relate to me. I can look further into getter care from providers recommended by other zebras"
-MJ
"I was alone and just had spinal surgery. I found the support group and someone reached out to bring me a meal. They not only provided me with physical nourishment but with mental, emotional and spiritual nourishment too.
-Kristen
After being gaslit by doctors for the past 10 years, telling me nothing could be wrong with me, I finally got my diagnosis after being referred to Cincinnati’s Children Hospital by a few people in this group!! So a huge thank you so much to this group and the help I’ve received!
-Emily